New year

It’s   a new year and it’s staring off with some new adventures for our family.

After ten years is this house, we are moving. Jeremy and I bought this house six months into marriage. This house is full of all kinds of memories, and it served us well as we started our family. But now that there are eight of us, and Isaiah needs so much equipment and special things, we have really been feeling like we’ve filled every inch of the 1,100 square feet of space here. So we will be settling on a new house that is almost twice the size of this one, on January 30th. We are so thankful for God’s provision. The children are very, very excited about having a big yard and already have lots of plans. We are hoping to move January 31st.

Another big change for us at the start of the year is that Isaiah is getting a trach. This decision has been long in coming. Ever since Isaiah’s airway collapsed on Oct 1st, it’s been a point of much discussion with his specialists. We have consulted with so many doctors, gotten second options, and their overwhelming recommendation is that Isaiah really does need this as his airway continues to get worse and really isn’t safe without one. He has maxed out the amount of oxygen he is able to get at home, and can’t continue to be on antibiotics and steroids constantly. He will be admitted this Thursday for surgery and will be in the hospital for 2.5 to 3 weeks.

So… the next month is going to be very intense. Not even sure how to prepare for a three week hospital stay. We’ve done it before, and it’s just really, really hard!  No matter how you work it, the children will be living in two different locations for for a few weeks, and that just makes things really difficult for everyone.

But, when the month is over, we will be settled in a new house, Isaiah will have a safe airway, and we will have night time nursing for him. All three things are going to make life more manageable for the long term, and we will hopefully look back at all the craziness and know it was worth it.

So here is to 2017 and new adventures!

 

 

Of Birthday’s and Blessings…

Today is my birthday. December is always a time of reflection for me. I turn another year older and also come to the end of a year and look forward to starting a new year. I haven’t blogged much this year, but I have a lot of thoughts swirling around in my head today, as I think back over the last 365 days. It’s been a wild ride for sure. There have been some twists and turns that I wouldn’t have picked. But God knows best. Always. December of last year I thought I was going to miscarry Isaiah. The months between then and now have been full of challenges and blessings. But today… I get to cuddle this adorable squishy precious little guy all day.

(He’s so cool, he has a hat to match his very loved frog)IMG_0072And having him in our lives, and the incredible blessings he is to us, well it’s more than worth everything that has happened this past year. So thankful for his LIFE. So thankful to have him with us. So thankful that he loves to cuddle with his mommy. That somehow he seems to know me and he loves me and is happiest in my arms. That makes my heart happy.

Sometimes it takes challenging things to realize how very blessed you are. I have seen in this past year how RICH my life is. I am surrounded by amazing family and friends. I’ve always known that, but it has become so very obvious  to me this year. I have been floored over and over by the generous and sacrificial love of the people that God has put in my life. I am humbled. We have been loved so well by God’s people.

My only wish for my birthday, was a date  with Jeremy. We were supposed to be in the hospital today with Isaiah for a sedated hearing test. But anesthesiology was nervous about sedating him two weeks in  a row, so they rescheduled for January. That worked for me. I started dreaming about a date. But a few hours after we got home from the hospital last Saturday, my two year old came down with the stomach bug. And we’ve been passing it around ever since. Throw in an upper respiratory infection for Isaiah, and the week was turning out to be a bit crazy. To say I was disappointed yesterday morning when another child came down with the stomach bug and our evening date plans were canceled would be an understatement. It just felt like too much. A dear friend called and asked if she could pray for me. And she did. She prayed for health for all of us, she prayed that somehow we could still go on our date. She prayed that God would show me that He is a good Father. A half hour later, my sick child asked for lunch and declared that he was feeling great. At the last minute, I was able to get everyone packed up and off to sitters and I got my birthday wish. A fabulous date with my favorite person. And Isaiah was a peach and slept the whole way through our dinner. And it was such an awesome reminder to me of God’s care and God’s provision.

So today, I’m counting my blessings. I AM SO BLESSED! IMG_1149_Edit2A husband who adores me and who has been amazing this past year. SIX beautiful kids!!!

I’m feeling refreshed after a little time off, and thankful for God’s hand leading and guiding our family this past year.

Looking forward to going into the next year with Him by my side. There may be many unknowns, but HE has a plan and He is working everything out for our good.

Thank you for the part you have had in our lives this year.Thank you for the way you have loved us and shown us Jesus.

Seasons

Life has many stages and seasons. The season that God has our family in right now is a challenging one. Isaiah is the sweetest baby ever, but he takes so, so much care. The appointments are seemingly endless. The schedule I keep is pretty much insane. Always trying to meet everyone’s needs, trying to homeschool. Helping my child on the spectrum work through all the changes, and hard stuff. Making sure the rest of the kids don’t get lost in the shuffle. It’s been hard. Really hard. But its been good too.

Seeing the compassion my five older kids have for Isaiah, is just precious. Seeing them grow and learn in these new situations is encouraging. Seeing the body of Christ rally around us and minister to us over this time is so humbling and heart warming. We know some really, really awesome people.  I can’t even express my thankfulness for the many, many ways people have blessed us. Prayer, meals, gift cards, gifts sent with no return address. Just words of love and encouragement.

I have been blown away by how God’s people have loved us so well. I’ve been blessed over and over again, as family has dropped everything at times to baby sit the kids, or help out in anyway needed. Thank you all from the bottom of my heart! Thank you for showing God’s love to us.

I miss blogging here, but when I’m home, I need to make every moment count, and blogging will just need to wait till another season. I hope to pop back on here from time to time with updates, but if you want to keep up with Isaiah’s story, you can follow his page on fb. Baby Isaiah.

Isaiah Scott

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We welcomed little Isiah into our family on August 16. After a pregnancy full of uncertainties and questions, it was so amazing to finally have this little guy in my arms. We held him for a bit and then they took him to the NICU. Isaiah ended up spending 17 days in the NICU. The first 11 days in Lancaster, and then he was transferred up to Hershey Medical. Having a baby in the NICU is hard. Very hard. Trying to be with your baby, recover from giving birth, and try to balance the needs of the kids at home. It was God’s grace and the prayers and support of His people who got us through that time. I’ve been totally blown away by the kindness of people. We have some really, really awesome people in our lives, and we truly are so blessed!

Me holding Isaiah in the NICU. I tried to spend as much time as I could with him, and it was always so hard to leave him there. Now that he is home… I hardly put him down. So thankful to have him home and in my arms!IMG_9892Finally heading home!!IMG_9896A few pictures from Isaiah’s first week at home.IMG_9904IMG_9911Isaiah needed to come home with his feeding tube still in, due to aspirating when he tried to do oral feeds. We aren’t sure how long he’ll need his feeding tube… but we’ve become pro’s at inserting his tube, and taking care of his eating needs. It’s definitely different that how I would like to be feeding my baby… but we make it work. Jeremy has been awesome helping out with many of his feeds, and even getting up in the middle of the night to feed him, so I can catch some sleep. He needs to eat every three hours, and it can take 45 mins to an hour to feed him, so it’s a rather involved process.IMG_9903IMG_9945my sister Miriam kindly took some picture for us after Isaiah was home. Thanks Miriam!IMG_9995IMG_9982IMG_9965IMG_0108IMG_0105-001IMG_0103-001IMG_0103IMG_0038IMG_0024IMG_0012Isaiah is 5.5 weeks old now and we are so happy to have him here, and home with us. He is a sweet little baby who loves his mommy very much and is adored by his little fan club. There are still a lot of unknowns about Isaiah’s future. He has a busy schedule following up with ten different specialists. It keeps all of us busy and it’s been challenging to settle into any kind of normal life. But we are doing our best, and trusting that God has a perfect plan for Isaiah and he will give us wisdom and grace to be the family that Isaiah needs. We are thankful that God chose US to love this little man!

Joanna Grace Is Two!

This little ray of sunshine is TWO today!

IMG_9440IMG_9432She woke up in a happy mood today, so we went outside to take some pictures, first thing. She loved it!IMG_9425IMG_9424IMG_9420Pictures from her second birthday party.IMG_9286IMG_9287IMG_9293IMG_9306IMG_9326IMG_9328IMG_9339IMG_9345It was such a fun party with her cousins, aunties, uncles and grandparents.IMG_9457IMG_9453IMG_9447IMG_9446Hard to believe that two years has passed, but can’t imagine life without her!!!

Then…IMG_6798Now…IMG_9263…and three more weeks till my baby girl is a big sister…

Happy Birthday Joanna!!!!

Three baby bunnies looking for a new home.

We have three bunnies that  are six weeks old this week and are ready to find new  homes. They are adorable. They are super tame. They have great temperaments. They are used to small children.

Baby Bunny #1 {this is a male}IMG_8780Baby Bunny #2 {a female}IMG_8762Baby Bunny #3 { a male}

IMG_8778The kids have loved on these bunnies since they were born and they are great with kids. So tame that my one year old can manage them just fine.IMG_8771IMG_8784IMG_8763Brooklynn has taken excellent care of these bunnies since day one. So proud of her.IMG_8775And if you want to see pictures of the parents… here you go.

These were taken this winter when they were spending a lot of time in the house due to cold temps outside.

Mommy Bunny {she is a Dutch Rabbit}IMG_2139Joanna loves bunnies. {please excuse the pizza sauce all over her face}IMG_2154Daddy Bunny {not sure exactly what kind of rabbit he is, but he is a gentle lovely rabbit}IMG_2165IMG_2166So there you have it. Asking $15 for each bunny. You are welcome to come look at them, and play with them. Bunnies will be sold on a first come, first serve basis.

NYC

Every year or two… Juliana and I take a road trip to NYC to visit Faith. I used to have to get on an airplane and fly to Asia to see Faith and also for a while to see Juliana, so having these two “local” is something I don’t take for grated. Love these girls and the huge ways they have invested in my life. I feel pretty blessed to be in my thirties and still be close to my some of my best friends from my  teens/twenties. Once you’ve been friends for that long… well you’ve done a LOT of life together and you just understand each other!

As always… the road trip with this lady was epic. We talk and laugh the entire way there and also try to keep track of directions too sometimes. Our goal was to start off at 6:15 am and we both got there early. Excited much?!?!?!IMG_8662After arriving at Faith’s we talked and caught up over Red Bean Sticky rice, fresh fruit and temptation bars, while waiting for her little guy to wake up.

Then it was off to a CUTE coffee shop to talk some more and of course drink amazing coffee. Thanks Faith!IMG_8665Faith with Hudson and her baby bump {second little boy}IMG_8660Me. After starting my day at 4:35 and having my last cup of coffee at 5:30… it was time for more coffee by 11:00!IMG_1387Then a trip to the park for Hudson to run of some steam and out for lunch at a Japanese restaurant. Yum!! Lunch was Faith’s treat. Thanks Faith!IMG_8674Isn’t he cute?!?!?IMG_8669The food.IMG_8671IMG_8676Then home to put Hudson down for his nap. More talking. A trip to get fresh Bagels, and then back home to make some grapefruit green tea. Which of course was amazing and just the caffeine we needed to start our trip back.

But of course before heading for home… we needed another picture of the three of us together, because that’s what we do. Every. Single.Time.IMG_1396And then the road trip home. Talking the whole way of course. Falling exhausted into bed a little after midnight, but so happy and refreshed by spending my day with these two! Thanks girls!!

And a HUGE thank you to my awesome Hubby who took the day off of work and had a fun time with the kids. AND my mother in law for watching them in the evening while Jeremy worked his evening job. Thanks guys for giving me the day off!